Return to Children's Hospital

Yesterday we drove to Little Rock for Brayden's swallow study.

Back at the NICU:

We were so fortunate that Dr. Arrington (the doctor God used to heal B) was working! He and Sayward (the world's best nurse) came out to see Brayden, and talk to us for a little bit! (Hi Melissa from WI - I'm doing a shout out for your Dad!):

Then we headed down to B's test...which is where the fun began...

Not that fun - that was B playing with his socks. The fun I'm talking about is the fact that our appointment got moved to Sept 9 of NEXT year! What?! I had called Wednesday because I had a bad feeling about this appointment so I wanted to confirm it. Everything was confirmed for yesterday at 1:30.

Well, they had cancelled us and had no openings! So we ended up waiting....

And waiting...Mom bought B a Scout dog - he's an icon at the hospital. Everyone took turns entertaining him and now I have further proof that he really is the best baby. He handled 8 lonnnng hours in the car and many more sitting in the hospital without issue!

Finally, the radiologist agreed to stay late and do the test at 4:30. Unfortunately, Brayden did not pass as much as we hoped he would though he improved. Everytime he has any liquid I have to thicken it until it's the consistency of honey. Now, he moved up one level to the consistency of nectar. We will make another appt for April/May and then we are hoping he can just take straight liquid (all of this was because of his silent aspiration).

We finally got home and went to bed around 10:30. Thanks for all of your prayers!