I just want to give a quick update - tomorrow they will be doing an upper GI test on Brayden. Basically they will watch him eat under and xray and make sure there aren't any abnormalities with the way his insides are formed. I don't know the time of the test yet (it wont be scheduled until morning).
I just got back from the hospital where Brayden had a good feed but then threw it all back up. We are just so tired of seeing him hurting and we want him well. Please continue to pray for Brayden and his tests and eating struggles. Thank you all so much!
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46 comments:
praying!!
I just found your blog through a tweet on twitter. I am praying for you and your sweet lil boy!
Still here...still praying. Hopefully, tomorrow's test will show the doctors what they need to know to help Brayden move forward. You are in our prayers as well....we know this is wearing you out and you just want to take him home with you and be a normal little family. That's all we want for you, too. May you have much to smile about tomorrow. We won't give up praying for your precious little guy.
Susan in Missouri
Praying they figure out what is going on with the little man. I think in the end, it will all be worth it.
I have and will continue to pray for your precious Brayden. My prayer is he can go home soon with his mommy and daddy!! I wish you the best on the Upper GI test tomorrow. God Bless.
Have they looked into Pyloric Stenosis? My nephew had that and recovered well after they found it. I'm praying for ya'll, I hope Brayden does better each day!
I have been keeping up with your story since the start, lurking in the background. My little girl is 7 weeks old and was born a month early and had some major lung issues. She was on the vent for about a week and was in the NICU for 2 weeks. I came home on Christmas Day without a baby. She straddled the fence on developing pulminary hypertension but pulled out of it. Those 11 days were utter hell. The last 3 or so days that we were there they were just making sure she was eating enough and maintaining her body temp and it was so frustrating b/c she was all but well excpet for the eating thing. I finally just flat out told them that I had sense enough to know if she wasn't eating and gaining weight and could do for her at home what we were doing in the NICU. She didn't have the reflux issues though.
Anyway, I'm saying all that b/c I know that even though you want him well, you are also very tired and frustrated and just ready to take him and go home and then deal with it. Even though you know the best thing is for him to be there, the human part of you is just so ready to be out of there. I just wanted to tell you to hang in there and when you do get home, these days will be nothing but a distant memory as you start your new life with your precious baby boy.
You'll be home before you know it!
I've been following your blog since your little guy was born and I just wanted to let you know that we're praying for your little man! I hope that the doctors can figure out some answers to his eating problems and that God will just HEAL him quickly! Stay strong mama!
Still praying hard in Tennessee! My 5 and 3 year olds pray for Brayden every night. Hang in there!
Praying for strength for you all. Tomorrow will bring good news. Look how far your cutie patootie has come. All will be well
That has to be tough and frustrating. Praying for your family, little Brayden, and the doctors so that they may figure out how to get Brayden eating well and home with you where he should be!
Hi there!
I have been following your blog for a while now, and saying prayers for Brayden. I know someone already mentioned this on a comment, but ask them about the pyloric stenosis. My son had this condition, and they had to do surgery to open up the muscle. It sounds scary, but it is actually very common especially among first born boys. Our son was 5 weeks old when they finally did an ultrasound to see that the muscle between the stomach and intestines was becoming thickened. He had lost 1 pound. He cried all the time, and was bascially throwing up after every feeding. He is a very healthy 2 year old now. Just has a scar on his little belly. Our doctor told us that it is usually something that they have to "figure out" after ruling out other things. Look into it. I will pray for Brayden. Much love.
Claire
So sorry the little man can't keep his food down. I know it is frustrating. Keep the faith that everything happens for a reason. He'll be home happy, healthy and hungry before you know it! xoxo
Have they tested him for Celiac and Eosinophilic gastritis?
Hoping you get some answers for your little one soon!
Jewel
We have been praying for Brayden for sometime. We will pray for this feeding issue to be resolved so you can get home!
Hi. Just wanted to let you know my son had an upper gi when he was 6 weeks. Not bad. The worst was that I nursed him and he hated the bottle. We got just enough of the barium down him to do the test. Praying for Brayden.
Hi. Just wanted to let you know my son had an upper gi when he was 6 weeks. Not bad. The worst was that I nursed him and he hated the bottle. We got just enough of the barium down him to do the test. Praying for Brayden.
I'm still praying for Brayden and all of you!
Stay encouraged because the God who gave you this sweet baby will also carry you through:)
Praying ya'll home every day
Jenna, praying the Upper GI test will help reveal some insight as to why Brayden is having trouble eating. Seeing your baby in pain because of something so simple and fundamental is so hard. Praying for strength and patience for you and hubby and healing for Brayden.
We'll keep praying, especially that the Doctors would have discernment and be able to find the source of little Brayden's struggles.
Will be praying!! Our God is still working through Braydens doctors. I know you are probably getting frustrated and you are ready to go home. Our Savior is still answering prayers. Praise God!!!
Good luck with the testing tomorrow.
Prayers are being said in London for your gorgeous little boy. xxx
Always keeping your sweet boy in my prayers. Hang in there and thank you for keeping us posted.
Good luck with the tests!!
We are praying in Katy, TX. My daughter Kayelyn had some major feeding issues after her 2 month stint in the NICU and one day they magically resolved themselves. On the day of her upper GI actually... They told me her gag reflux was over stimulated because of the ventilator and changed her nipple to a smaller one then she did just fine.... Have you tried that?? Keeping you in our thoughts always....
MKB
Praying in NC.
Praying for you all today as Brayden has the upper GI done. I pray that they find out what is causing his problems.
I understand how hard it is to watch your child throw up. My daughter had problems with acid reflux and would throw up a lot.
We ended up trying several different bottles to see what helped keep air out of the bottle. We used Platex Vent-Air bottles. I pray they can figure out what is going on soon.
We are still praying for little Brayden!
Have the dr.s check for pyloric stenosis. My son had pyloric stenosis, he exhibited the same signs as your Brayden...the upper GI and an ultrasound diagnosed it. After surgery he recovered and began eating like crazy and came home from the NICU 10 days later! Saying prayers for your family.
Jenna & Chris-
I have been looking at your blog everyday now wondering whats going on with my sweet little guy. I just knew Monday night that something was bothering him, I pray that the UGI will tell them what's going on and we can get him on the right path and ready to go home where he belongs! See you tonight.
Shannon
Praying wisdom for the doctors and that a solution will be found.
Praying for Brayden!
Still praying...praying for your sweet mamas heart as well.
I just heard you on the radio. I was tearing up with you. You were great! Miracles do happen! We are continuing to pray for Brayden!
PRAYING!!!!!!
Thinking of you and sending prayers for Brayden that all will go well! A boy has got to eat!
We're Praying!
It has been awhile since I have posted a comment but I have not stopped praying...
Love,
Your Sister In Christ... Bryant AR
I have three boys and all three of them had reflux. They did not have to have the surgery, but one came close to it. My 19-year old is now 6'5" and 220 pounds. Baby Brayden will start eating and grow big before you know it. Hang in there, Momma! We'll keep praying for him and you.
I have been an NNP for 24 years and have seen a lot of babies that 'don't like to eat' like your boy. We used to nipple babies on a schedule but no longer do. We use a 'cue-based' system that uses a baby's signs of interest in feeding to decide when and how long to feed a baby. This does away with a lot of anxiety for both the baby and the family as each feed is no longer measured in terms of how good or bad he did. I hate to see what you are going through, and even worse, the concern that he may need long term intervention. Is there a possibility that you can ask his medical team to allow him to feed on a demand schedule for a 2 day trial period? This means that he would be able to take as much or as little as he wants, as often as he wants. Usually once a baby shows that he can take a feeding, like your son, it is very successful. He may take just a small amount at one or two feeds, but then wake up more frequently. In the end, its the intake that's important. It won't hurt him to try something like this as it won't be a long enough period of time to dehydrate or cause excess weight loss. Make sure the feeding tube is out during this trial. If I were you, I would refuse any surgery until he was able to prove that he is not able to take in enough to thrive. I wish you all the best.
Have been following your blog since Brayden was born. Please know you our in my thoughts and prayers daily. May you continue to stay strong in your faith and your "mother's intuition". Hang in there and before you know it, you'll be home and all this will be behind you! Praying from NW OK.
hi jenna! hoping things went smoothly today. i bet one day, you're gonna look back and laugh because he will be a teenager and will probably be eating you out of house and home! :)
praying for God's timing, but praying you have the blessing SOON to bring your baby boy home.
still praying and remembering your family here in maryland! -tara
OH how I wish we could talk in person or via email! This is sooooo similar to what we went through with our son who is now 6 months old. Please feel free to email me....I would Love to help. I am also a speech pathologist and would love to help you with any questions in that area. I will be attending a conference in Las Vegas the end of March addressing little Braydens concerns. It will be a great conference and I will be more than happy to share the info with you!
I know this is not what you wanted but I hope that it gives you some answers. At least afterwards you will know what you're dealing with and then he can be helped! Keeping Brayden in my prayers!!!
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