Today was a rough day. Brayden's numbers are down and he has a new doctor - they switch every two weeks and our doctor was at the end of her rotation. During the weekends there are also different attendings, and the doctor that is with him right now is the man who started the NICU unit of the Children's Hospital. He has been there for 30 something years and knows a lot about PPHN.
Brayden's jaundice numbers are up to 23 but they say that is the least of their worries, and that it is being caused by all of the medications that he is on. Currently, he is on a sedative, a pain reliever, a paralyzer, a PPHN med, 2 or 3 BP meds and something else....forgive me, I'm super tired and I know I'm missing one med. It is very hard to see all of these things being pumped into him.
I don't have new pictures because he is under two very large jaundice lights and the pictures aren't turning out. His little skin is drying out from the lights and I just want to make it all better and make it all go away but I can't. But God can, and he hears our prayers and I am so thankful for each and every one of you and your prayers on his behalf.
Thank you so much to all of you...those I know, those I have met through Blogland and those who have found our story through all of you who have posted prayer requests on our behalf. We love you and thank you from the bottom of our hearts.
Subscribe to:
Post Comments (Atom)
.JPG)
144 comments:
All I can think to say is God is Bigger, and Hang In There...
We are praying for you guys!!
praying for your son
Praying for that sweet baby boy! I cannot even imagine what you're going through... I know it must be the most helpless feeling! My heart aches for your family!
God is in control. I can't wait to hear how God has healed Brayden. Try to get some rest. Continuing to pray!
praying for you and baby Brayden
I have no words...I'm thinking of you and Brayden all the time and praying for you...
So glad for an update....still praying like crazy!!!
We are praying for baby Brayden in Chico, California.
Hang in there Jenna, I will not stop praying for Brayden and you! Hope you are feeling ok with the c-sec, I know first hand how hard that is. God Bless
Still praying for you!!!
Praying for the Lord to wrap Brayden in his healing arms and give you a miracle.
Thinking of you in Chile.
Still praying for your lil Brayden! Stay strong...he needs you as his rock!
Praying without ceasing for your precious Brayden. Praying also for rest for you and your husband.
Rest in HIM,
Kaye
Matthew 21:22
We are praying for Brayden and for your family as you have to watch him go through all this!
Praying for your sweet sweet boy.
Praying for you in Dallas, TX.
Praying for him from Kentucky.
Paige & Charli Beth
Still praying
Thanks for the update. I have been praying for you and watching for an update. Remember you and Brayden are being surrounded by love and prayers from all over.
Pam from Fort Smith
Jenna, may the Lord lift all of you up! I am praying for Brayden so much. I am praying for you and Chris and ALL your family! I think about baby Brayden and Harper so much! I can't stop praying.
I can't even imagine what you guys are going through! I am still praying for you guys and your sweet little Brayden!
Thanks for the update. We will continue to pray for God to heal Brayden and give you and Chris His peace. Get some rest and continue to keep the faith. We love you guys. Please let us know if there is anything we can do for you.
In Him,
Jeremy & Vonda
Praying for your family and little baby Brayden. I can't imagine the hurt both physically and mentally. You're in our prayers!
Thank you for taking the time to update. I haven't been able to think about anything but Brayden and Harper all day long. Our family is praying often and so hard. God is good and he always has a plan...again, we are praying so hard!!!!
Just found you blog. Please know that you now have one extra person praying on your behalf.
-Laura in NC
Can't stop thinking and praying for your Bryaden. Hang in there and thank you for the update.
Still praying!!!
I found your blog through Kelly. We will pray for your beautiful son!
I'm praying for your sweet baby and for you and your family.
Blessings,
Christy
I found your blog from the blog about Harper (which I just found out about from MckMama) and wanted to let you know I'm for Brayden, his family, and everyone involved in his care.
Jenna--we are praying for all of you, and sending many warm hugs from Las Vegas, NV.
Praying for Brayden and your family!
Praying in Katy Texas!!
My daughter Kayelyn was born with the same issues and is 7 months old now! She was in the nicu for nearly 2 months but has made a complete recovery!! Brayden will too!
When She was in the NICU I found the most comfort talking to other NICU parents who had been there or were there with me. Please don't hestitate to contact me if you want to learn more about how we dealt with it...
http://brew-aggie.blogspot.com/2008/08/taking-time-to-reflect.html
God will pull your and your son through this.... Some babies just have a bumpy start!
I've been following your story -- wanted to let you know that we're praying for you and Brayden from Long Beach, CA!
Thank you for taking time to update all of us. God is bigger than all this and He is the Great Physcian. It sounds like Brayden is in the best possible hands with the Head Neonatologist caring for him. I remember pleading with the Neonatologist about how dry and peeling my little one's skin looked. I just wanted to put a little lotion on her skin, but of course that was not allowed. It's so hard as a mother to want to jump in and make it better for your baby, but you aren't allowed to.
Brayden can feel your love, strength, determination and hope. Keep fighting this fight. We're all praying with you.
Thank you for updating Jenna...we are praying!! We will remain steadfast in prayer...
you do not know me, but just like many others, i have heard of your situation and wanted to let you know that i am praying for you and your family! =)
Prayers from WV.
My prayers are with you and your family. When I read how difficult it is for you to be silent because Brayden knows your voice, it made me think about our heavenly Father. How many times have we prayed and felt that silence wanting to hear His voice? So it made me realize He is still there but His silence is for my good. What a story you will have to tell your son one day. I am glad your faith is strong enough to carry you through this journey. My prayers will continue to be with you. Psalm 121
Jenna, I've come across from another blog asking for prayers for you and want to reassure you that you are very much in my thoughts here in the UK. Come on Brayden!
Praying for Brayden's healing!
We are praying for you, keep the faith. Remember you need to keep yourself strong for Brayden, know you have people all over praying for you. Try to rest and keep youself norished, Brayden needs you healthy.
praying for you and your little baby. even when it's hard to believe, even when our hope seems all gone, there has never been a night without a dawn. He'll remain faithful. : )
love and prayers,
Debbie Lim
Many prayers for your family!
Prayers are being sent your way from SC. You are being such a strong mommy. Keep the faith.
I am so glad that you reported on Brayden....I was glued to my laptop all day yesterday and honestly couldn't wait to get up this morning to hear some news. We are ALL still praying for that sweet baby and we just know the Lord has His hand on Brayden.
praying for your sweet baby boy in NW Louisiana!
Jesus, I pray that you bring healing to this little baby. I pray that you be there to comfort the new Mama and Daddy as they walk through this difficult time. Lord let your presence be known. God, I can not imagine not being able to talk to or touch my newborn baby, please God bring healing and bring it now. I lift up this precious new family to you Lord and I ask that you bless them, with joy, with laughter, and an everlasting peace. You are the Almighty Healer and we trust in You.
Jenna and Family,
Still praying for y'all... all the way from Bucharest, Romania. God bless and keep each of you....
The Bliznik Family
Your family is in my thoughts and prayers. Everytime I think of my daughter I will send I prayer up for you.
Joy
Jenna,
I found you through Kelly's blog. You, your husband, and Brayden will be in my prayers. Our daughter was born in October with pneumonia and pphn. I didn't get to hold Blair until she was 10 days old, but she is home now and doing well. We dealt with the same sort of doctor rotation with our NICU. Hang in there; God has put Brayden in good hands. Your faith will get your through this. I will pray that Brayden's blood gas levels improve and the the pphn gets better. God has been so good to us; He hears our prayers and will take care of little Brayden. Please contact me if you need to!
ashlee
ashleemwood@gmail.com
Praying for miracles for Brayden and Harper. Praying for peace for you and your family.
Hugs and Prayers
Rachel in PA
there is no worse feeling than having a child sick and in the hospital. My son was born 6 1/2 weeks premature in July 08 and spent 15 LONG days in the NICU. Keep praying and God will take care of him. He did for our son and he is a happy and healthy 6 month old.
Tiffany in Nashville, TN
Still praying for Brayden.
I'm still praying.
Praying for your precious baby boy.
Praying for your sweet litte one and for your family..........
Arlene in Baton Rouge, LA
Still praying for you, sweet baby Brayden and your family. Thanks so much for the updates. Like so many others, I found you through blogland and truly care about you and your precious baby and wish you didn't have to go through this. Our God is great and I am asking him to lay his healing hands on little Brayden.
I'm praying for Brayden!
Jenna,
I have never commented before. Please know we are praying in the midwest! Make sure you don't overdue. My oldest who is 14 was born 6 weeks early, and I too had a c-section, I stayed at the hospital all day after I was released and ended up developing a hernia that I then had to have surgery on 6months post-baby. Try to keep your feet up and take care of yourself, I am praying for your healing as well.
Praying for you and your family in N.J.
I'm sorry you can't touch and hold your sweet babe right now. When my last son was born we were in the same situation. The nurses even taped baby earmuffs on him because the slightest noise would agitate him. But, God CAN and DOES touch and comfort him when you can't.
It may take some time, but I pray that one by one many of the drugs are discontinued...little by little you will be able to touch and hold him...day by day his lungs will become stronger and blood gases improve...minute by minute you will continue to lean on the Lord for strength and wisdom.
Praying for your family. God is still on his throne and surrounding your baby with angels!
Connie Austin TX
We will add your little guy to our prayer list on our blog. We lift you and your husband up in prayer too.
I just want you to know that we are praying for your sweet little boy! He is so precious, and ACH is the best place for him to be!
little is worse than having a baby in the nicu. i know, i've been there. but so many prayers are being said for sweet little brayden.
be strong. and trust Him.
much love your way.
Continuing to pray for your precious baby boy. My heart aches for you and your husband.
I've been thinking about you guys and continuing to pray that his little body is healed quickly!
Praying for Brayden and you and all your family. I ran across your blog through Kellys. I cannot believe both of you are having to go through this right now. God is with you at all times and I will continue to say many prayers.
Laura Colclaure
First of all, he's BEAUTIFUL! And I'm trusting that you will be holding him soon and telling how much he is cherished. May that happen sooner than you expect. Prayers are being lifted up for you and your son from Lake Saint Louis, Missouri.
Love and blessings to you. God CAN make it all better. He is holding you and Brayden and your husband in the palm of his hands. He has blessed you with a wonderful medical facility to care for your boy.
I am praying for your little baby
Praying for your family and for Brayden!
Hi, I found you through Kelly's blog and have kept you and Braydon in my prayers since reading your story. I just wanted you to know that I am thinking and praying for Braydon.
I am sending all my prayer warriors over for you guys. Hang in there and trust that the Lord is with to comfort you every step of the way. I know exactly where you are right now :)
God Bless!
The Freemans :)
(www.KayleighAnneFreeman.blogspot.com)
Praying for sweet Brayden. What a beautiful boy he is!
Sending many prayers and lifting your family up in our thoughts.
Laura from SC
may your little boy thrive. As a bereaved parent, I would hate to know of another parent in pain...
((many hugs))
We are praying for you and your family. You have a very handsome little boy!! God will take care of him and guide the hands of the doctors and the NICU staff as they continue to help your son make progress.
Heather, Joseph, & Bailey Alyse Woollard
Wetumpka, Alabama
Jenna, I found your blog through another one and just want to say that I have added Brayden & your family to my prayer list. God is so good and faithful, even in our difficulties.
May you have peace in your heart during this difficult time. I too had my daughter 3 weeks ago at 35 weeks and she spent 2 weeks in the NICU. She is home now, but we have a long way to go. It is excruciating to not be able to hold you sweet baby you've been waiting for all these months, but with God's grace your son will continue to improve and he will be in your arms soon.
Praying for your little boy...
Hey friends, I am praying for your Brayden, I am sure you are scared. I came to your through Kayleigh Freeman's blog! I will make sure I share with my blog readers to pray for you guys too.
As a former NICU nurse, I know exactly what little Brayden is going through!! I know how hard it is for you guys to watch all that is going on around him. My prayers are with your family and little Brayden that he recovers quickly! My the eace of Jesus comfort you through this difficult time! Jenny in Sabina, Ohio
Praying so hard for you, for Brayden and for your family. This morning in church we learned that problems in our lives that seem like Giants, are like grasshoppers to God.
Thinking of all of you...
Hi there! Congratulations on your sweet Brayden! I found you through Kelly's blog and I have been thinking about you and praying non-stop! I added you to our church prayer chain this morning and the congregation prayed for you during the service. Thank you for the update- and for sharing your story. Take care and God Bless you and your family!
-Jenni
Shakopee, MN
Praying for your family!
Praying for your sweet little boy Brayden. You are so brave and so courageous! Praying for you as well!! Take care of yourself too!! Maridith from NC
Jenna, I'm so sorry for what you're going through. I know how you and your husband would love to be holding Brayden right now, but know that God's arms are holding Brayden close. I'm praying for a full recovery for your sweet baby and peace for your whole family. Know that a sister in Christ from Lancaster, PA is holding you close in prayer.
Jenna, I've never commented before but have been following your story since around the time you found out you were pregnant. Words can't express how sorry I am things have gone this way. I am constantly lifting Brayden and you and Chris, as well as his doctors and nurses up in prayer. God is good and is in control - nothing is too big for Him to handle!
Found out about your sweet baby through Kayleigh's blog. Please know that I am praying for Brayden. I hope he will be home in your arms very soon!
I am praying for you and your son. May Gods love surround you in this difficult time!!
Still praying for you. I can't imagine how hard this must be for you and your family.
I found out about your blog and your little boy's situation through Kelly Stamps' blog. I grew up with her--she's a wonderful person! I know you don't know me, but if there is anything at ALL I could do for your family--I would just love to help (I live in LR just about 10 minutes from ACH. I volunteered there before my daughter was born and it is such a wonderful hospital.) I've been so moved by the people who do not know Kelly that have shown up at the hospital or helped them in various ways, and I wish I could do the same for you since you are right here in "my" town. If you want to e-mail me it's: jleahgarner@yahoo.com
I'm praying for your sweet baby and following your story as I follow Harper's now.
Jenna, I can't decide if he looks more like you or Chris - I see both of you in his picture. I am praying for y'all. Please let me know if there is anything you need done here at home - I'd be happy to take care of it for you.
Praying for you and your sweet boy,
Jenny in MN
I have been following your blog for a while now and just wanted you to know that I am praying for your sweet Brayden. My husband and I actually live in LR and if you need anything at all, please don't hesitate to email me-bmgarrett@gmail.com. I would be happy to help you all in anyway I can. May you all feel Christ's love and presence surround you and Brayden.
Becky Garrett
I am praying for you and your family!!!
praying for you in oklahoma
God is Good ALL the time
Praying in texas for you and Brayden!
Jenna,
I just found your blog and I wanted to let you know that I am praying for you and your family, and your sweet little boy. I also posted a link on my blog to yours, asking my readers to pray.
God hears His people when they faithfully call His name!
I will be back to check on you daily. Much love and ceaseless prayers,
Devin in Illinois
We are praying for all of you.
Hugs and prayers,
Amanda
http://beforethrone.blogspot.com/
Heard from a friend you are in need of prayer.
Praying for your little baby boy, that God would work His will in this situation and provide for whatever needs you may have.
My heart goes out to you even though I've never met you! I KNOW how you are feeling with your son on so many meds, under the lights, having all kinds of tests, etc. performed on him... it hurts more than anyone can imagine. Our son was in the NICU for a long while, but he is now a happy, healthy 8-month-old. Brayden WILL get through this! And God will hold you up during this incredibly difficult time. Prayers...
I have been praying for your precious baby and all of your family! I will continue! He is in great hands - God is taking care of your sweet child!
Our hearts and prayers go out to you and little Brayden.
We've added you all to our Blog Prayer List (on our side-bar) and you will remain there, til Brayden is healed.
~Blessings,
Jan & Tom
I am praying for Brayden's healing, strength and comfort. I am also praying for the doctors and staff that are with him, making important decisions about your precious son. May God hold you all in His mighty hands.
Angie
My entire Sunday School class lifted you and Brayden (and Kelly and Harper) up by name this morning, and they have committed to continue to be in prayer.
Lord HEAL THIS BABY!!! Lord breathe in sweet Brayden's lungs, and regulate his body. Lord please give wisdom to the doctors. Father please wrap your loving arms around Jenna and Chris as they endure all that is going on.
Father we love you, and we believe.
God is in control and He hears your prayers! We are praying for your family and your precious new baby boy!
Praying for Baby Brayden. I don't know you guys, but I love you with the love of Christ! Praying HARD!!!
Praying that your sweet little boy gets better minute by minute! My heart goes out to you!
You're on my mind and in my prayers...
Hi, I just found your story through a friend and just wanted you to know that we are praying too...here in Fairbanks Alaska! My daughter went through VERY similar circumstances when she was born. It took every ounce of faith to keep my eyes on the Lord. But He heard our prayers and she is a energetic, fiesty little two year old now! Beautiful and loving life! Praise God that He is in control! Brayden is in His hands! Praise God! We will keep praying...and trusting with all our hearts that this little guy grows into a strong man of God!
Praying for you in AL!!
My thoughts and prayers are with you and your son.
He is so precious. I hope gods healing hand and light surounds him and makes him well.
Your family is in our thoughts and prayers in Arlington, VA.
We just found your blog through Kayleigh Freeman. We will def. start praying for sweet Brayden. He is such a little angel!!!!
Love,
The Michaels Quads
I just found your blog through MaryKate and your family is absolutely in my prayers. God bless.
I will squeeze my own kids a little tighter tonight and pray a lot harder for you and your little man!
I'm continuing to prayer for you and your family. Hang in there.
Just found your site. We've recently expeienced the ECMO with a new baby in our extended family. If you'd like to see how great he's doing go to www.caringbridge.org/ and type in his name ryderdodson. God has brought this little one through some terrible circumstances and now he's home with his family and gaining & thriving on the love. God is so good. Doris
Found you through Angie and Kelly. Our baby boy had PPHN and went on ECMO at U of Michigan 4 years ago this coming March. He is thriving, healthy, and happy. We felt God's love and hand more than we ever could have imagined. He is a true healer and I hope you are feeling his blessing and presence. Please feel free to email if you have any questions....Praying for quick resolution to PPHN and great numbers.
Praying for your sweet baby boy.....
Prayers are being said from Missouri. Found your blog from another blog.....praying so hard for Brayden!
Amanda in MO
May God bless your little one and your family. Lean on him for your comfort and strength. GOD CAN AND STILL DOES ALL THINGS!!
I found your blog by reading Kelly's and seeing little Harper. May both of your families be holding your precious little ones soon and them both be totally healthy.
Praying for healing for Brayden & "stability" for you & Chris...there is nothing worse than "unknowns" with your newborn baby! Keep hanging in there - Prayers from Georgia...
Brayden is such a beautiful name for such a beautiful boy. Praying in NC
Praying for you and your little man. I know the pain of waiting for a child. I cannot imagine what you all are going through. God is already in all the tomorrows. He knows and He will hold you. I hope it is a comfort for you that there are many of us who will be interceding for your family.
Saw your blog from a friend's site. Praying for Braden and for your family for complete healing and that God would provide you everything you need. I'm also praying for little Harper at the same hospital. Love to you from Southern California.
Prayers from Alabama........
Blessings!
I'm new to your blog (came here from Kelly's Korner). I'm so very sorry for the troubles your sweet son is having. I just wanted you to know I'm praying for him daily in Michigan.
I have a Braden too! My Braden was in NICU for 5 days (he is a twin) he is a healthy ten year old boy now.
Praying for you!
Kelly
Praying for your sweet little man...
Brayden is a beautiful little guy. We are praying for you in Michigan. I was made aware of your situation through another blogger and felt a rush of emotion. Our son Jacob had some struggles with PPHN and was transferred to another hospital after he was born. God is good! Jake celebrated his 7th birthday this past friday.
In Him, jen in mighigan
I don't know you, but I found you through Devin's blog. Praying for you tonight and for your sweet baby boy!
Jillia
Lots of love and prayers!
Praying for Brayden & your whole family during this difficult time. I have been thru a similiar situation with my son William. He was born 17months ago on his due date. We never dreamed he would be born sick. He was born with meconium aspiration syndrome which caused severe PPHN. They had to put the breathing tube in in the delivery room, and he was on the oscillator/ventilator for 10 days. I also signed papers for him to receive ECMO & have him transferred to another hospital where this would take place. We were blessed and for weather reasons transport was delayed & his gases improved slightly and we were able to stay. My husband & I got to hold Will for the first time when he was 12days old....it was priceless. It may seem like I'm really rambling on but I just want you to be able to relate....because William is doing awesome now. We went home from the hospital after 20 days. He's never had any respiratory issues since then. He's a precious boy who runs, chatters, and loves to give hugs. I love to share our story because nobody believes me when they see him. You would never know how very sick he was. I hope that we give you a little ray of hope, I know first hand how long the days seem and how slow the progress seems as our babies recover. If you would like to keep in touch, I'ld like that but I realize how stressed and busy you are now. I will be keeping Brayden in my thoughts and prayers. He's a beautiful baby boy! Annette
www.caringbridge.org/visit/williamdaunerolson
www.daunerolson.blogspot.com
Jenna,
I came across your blog today and just wanted to say that Brayden is in our prayers. I pray that you are feeling God's love and peace during this time. Hold on to Jesus - he's holding on to you.
Bonnie in TN
came across your blog, through Kayleigh's...please know I am praying so very hard for your baby and your whole family. Try to take care of yourself as well, I can't even imagine how hard this must be on you. Your baby is just beautiful, will pray that he is doing better soon! God Bless, Leslie in CT
While Brayden rests up under the bili lights, hopefully mommy can sit in a chair nearby his bedside and rest too. Still praying.
Just keep in your heart that you will hold Brayden in your arms soon enough. {{hugs}}
Know that we are praying for you and know God is right there with each one of you with his arms around you. Know that peace that he is there and all you have to do is trust in him and have the faith that he is healing and taking care of your precious baby boy.
I do not know your family but I came across your blog from anothers. I first want to say that I will be praying for your little guy. God is the Ultimate Healer and We praise him for Brayden and pray for His protective hands on him. I am a neonatal nurse and we beform ECMO in our unit. We have lots of PPHN infants. They are very sick at first however the outcome for them is usually great! I don't ever want to give you false hope or go against what the doctors are saying, however I have rarely seen a child die from PPHN. It sounds like his pO2 his rising and that is what you want to see. So praise God for that!
Post a Comment