Today was Brayden's ONE WEEK BIRTHDAY!!! And he has had his BEST day yet!
Dr. Arrington came by this morning when he saw us come in (which I love, because he's the best)! And we got our first piece of great news for the day....
It looks like Brayden no longer has PPHN!!!
I talked to his morning nurse and she said that it's very, very uncommon for PPHN to go away this fast. So, YAY! Go God!
Then this afternoon we went in to visit with him and he was down to 77% oxygen on his vent! Yay! We just got back to the hotel and Chris called our favorite nurse (hi Sayward if you are reading this!) and she said he was down to 70% and they are talking about weaning him off 5 points (or whatever they call it...it's not a percentage) of his nitric!!!!!!! We were told before that the most they wean is 2 a day, so this is a huge praise! Once Brayden gets down to 60% on his oxygen they are are going to start the wean on his nitric, so please continue to pray that Brayden can tolerate his weans!
I really think my little Brady Bear has his Daddy's competitive spirit and he wants to break all records possible. I really think he heard the doctors talk about putting the catheter in his neck and he decided he had better get with the program.
Here are a few pics from today. He is totally off of all blood pressure meds and his jaundice lights. No more blue pictures (though I love that one where he is holding my finger)!
His swollen (but totally adorable) face:
Me and Brady:
Daddy and Brady:
We made signs for the end of his isolet, and this is one of them:
We also printed and laminated pictures for him to look at once he can open his swollen little eyes, and we will rotate them out so he always has something new to look at.
Thank you for praying for our baby! Your prayers have truly made the difference in his life. We can feel them, and they are getting us through this! Thank you, thank you, thank you!!!!
.JPG)
