Today was Brayden's ONE WEEK BIRTHDAY!!! And he has had his BEST day yet!
Dr. Arrington came by this morning when he saw us come in (which I love, because he's the best)! And we got our first piece of great news for the day....
It looks like Brayden no longer has PPHN!!!
I talked to his morning nurse and she said that it's very, very uncommon for PPHN to go away this fast. So, YAY! Go God!
Then this afternoon we went in to visit with him and he was down to 77% oxygen on his vent! Yay! We just got back to the hotel and Chris called our favorite nurse (hi Sayward if you are reading this!) and she said he was down to 70% and they are talking about weaning him off 5 points (or whatever they call it...it's not a percentage) of his nitric!!!!!!! We were told before that the most they wean is 2 a day, so this is a huge praise! Once Brayden gets down to 60% on his oxygen they are are going to start the wean on his nitric, so please continue to pray that Brayden can tolerate his weans!
I really think my little Brady Bear has his Daddy's competitive spirit and he wants to break all records possible. I really think he heard the doctors talk about putting the catheter in his neck and he decided he had better get with the program.
Here are a few pics from today. He is totally off of all blood pressure meds and his jaundice lights. No more blue pictures (though I love that one where he is holding my finger)!
His swollen (but totally adorable) face:
Me and Brady:
Daddy and Brady:
We made signs for the end of his isolet, and this is one of them:
We also printed and laminated pictures for him to look at once he can open his swollen little eyes, and we will rotate them out so he always has something new to look at.
Thank you for praying for our baby! Your prayers have truly made the difference in his life. We can feel them, and they are getting us through this! Thank you, thank you, thank you!!!!
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109 comments:
It is such great news to hear how lil Brayden is improving!!! Continuing to pray from Los Angeles!
Stacie
I don't even know you, but I am praying daily for your little family. When I saw the signs and pictures you made for your son, I started to cry. You guys have amazing strength, and I admire your courage.
He has the most adorable lips and I love the little cleft in his chin. Prayers from Massachusetts.
I'm glad you all got a good report today. I pray that you get many, many more!!
I have been praying for your little boy daily and will continue to do so! Stay stong for the little guy! I am so happy that he is doing better! He is adorable!
I am so glad to see this post!
I have been praying for Brayden! You are such a strong woman and I admire you for it!
Hey Jenna! I am a friend of Julie Green's and live in the area! I have been praying for your sweet baby for several days and I am so excited that he had such a wonderful day today! I would love to do whatever I can for you guys...if you have a chance, I would love it if you would e-mail me, and let me know if you guys need anything!!!! (jillfbrannon@yahoo.com)
Isn't GOD AMAZING? WOW that is fanastic news! I am praying for Brayden as well. I went over to Kayleigh Freemans blog and asked for prayer for him as well.
Give that cute boy a kiss for me.
Kristie
I stumbled across your blog about a week ago and have been checking in daily to see how Brayden is doing. I am SOOOOO happy to hear that your little man had such a good day. I have been keeping your family in my thoughts and prayers. Isn't this whole blogosphere amazing...how people who have never met before can care and pray for one another like they have been friends for life?
I have been a blog lurker for a while and I have been praying daily. I am so glad yall are getting good news everday. Praying for you and your family from Texas.
Still praying for all of you!!!
Yay Braden!!! Stay strong and keep fighting!!!
Praise God!!! Continue to pray for your sweet sweet baby.
Yeah! Yeah! Yeah! Praise be to God for healing this child. I know He will make things better each day, and soon you will be home with your sweet baby. Be tough little man!! God bless ya'll!!!
This is so great to read! I hope he keeps breaking the records!
Still praying....cutest chin ever!! So thankful for good reports...rest well mama.
I found you after checking on a blog family I read all the time and after several clicks I came to your blog. I am a neonatal nurse in the NICU where I live. I hope your sweet boy gets better with each day. I will remember him in my prayers.
He is just absolutely precious! I am so excited to hear that you are getting good care and even more important, PPHN is GONE!!!!!!!!! PTL!!!!!
God is good all of the time, I am praying for your family and your little boy. He is absolutely adorable you are truly blessed. May God be with you, may you feel His loving arms around you during this stressful time.
God bless.
I've been praying for you all. Your posts bring back memories of when we were in NICU with our daughter in October and November. You learn lots of new terminology, right?! It's great to hear he is improving.
ashlee
ashleemwood@gmail.com
Wonderful news!! We are praying for Brayden!!
Oh great news!
I am still praying!
Jenna-
I'm so glad to hear Brayden is getting better. I want you to know that I am still thinking & praying for you and your family.
Amanda
Ruston, LA
YAY!!!! That's awesome news! We've been praying for Brayden and Harper and all you grown ups EVERY EVERY day! Praying the good news keeps on coming!
PS. My word verification thing below is "blest" how perfect is that?!
Praying for baby Brayden everyday. God is GOOD!
Wonderful news. Yay God!!! It's nice to see the pictures. He is beautiful (or handsome). I will keep you in my prayers that he continues to improve daily.
Pam in FS
My six year old and I have been following your blog for the last several days and have been praying for God's healing power for Brayden, and asking God to make His presence known to you and your husband in a very real way. God is
so good! Will continue to pray for all of you! Vicki in Oklahoma
great news. I Love good updates. Love the pictures.
Great new on Brayden. I am glad things are looking up. Will continue to pray for the lil guy!
PTL! I am so happy to hear the good news! Happy one week birthday to Brayden!!! Still praying for ya'll!
I don't know you, but I know that Our God Reigns over every situation. He heals. I'm praying for your little Brayden.
Jenna he is just adorable! I know you love spending every moment with your precious boy. We are praying SO MUCH for your sweet baby boy! Also, I wan't one of those "praying for Brayden" things on my blog page but can't put it on there! I'll keep trying!
Ok, now that I am crying...I think I should be able to write you a quick note. Let me tell you that between Brayden and Harper and a friend of mine that just went through IVF and found out she is expecting - you guys are keeping me busy and working me OT with my prayers!! Let me just tell you that I am THRILLED that things are looking up for your sweet boy. I love the sign that you made for him and the pictures just touched my heart!! You both are such strong and loving parents and I read it and see that in your blog. Just know that your little boy is loved so much and he is always in my prayers. I can't wait to see the pictures of you both taking turns at holding your precious boy!!
WOW - God is so good!!
Hugs,
Lisa (Ohio)
What wonderful news!! I love your sign and pictures...you are an awesome mom!!!! We are continuing to pray!!!
Yay! God is GOOD! Continuing to pray...sounds like he will be home soon. Go Brayden!
I am glad I found your blog! I love new specific things to pray for! Your story is EERILY close to my own son's birth! Trust me...in time this will all seem like a blink! Just keep trusting God, and he will be there! Praying for you and Brayden!
-Courtney
Yah God!!!Sounds like a super day of great news!!! You are ministering to so many in that hospital and through your blog. Hope tomorrow is better. Praying for Braydens levels.
Praise the Lord, so happy to hear that Brayden has improved.
We will keep praying for your little fighter.
Blessings.
That is wonderful news! Praying for your precious family!
I am so glad to hear he is doing so much better. I came across your blog the day he was born and have been praying for you & your family ever since. God bless you and your family.
i am glad to hear he is improving! we will keep praying in Texas!
ok..so i don't know you but i know kelly...long story...but anyway..God is so amazing..i grew up with sayward..your son's nurse and i have been praying for her for 12 years to see to glory of God and understand that he is all there really is to cling to in this life. she is an amazing nurse and she will love your son like no other...let your faith be a witness to her and lets see Gods unfailing mercies unfold like an unimaginable painting right infront of us..praise be to GOD...
purchased...
mheinze
Prayers for continued good news are now being coupled with prayers of gratitude for the hurdles Brayden has crossed! Each update brings rejoicing and hope that you're letting go of the anxiety and able to enjoy his progress fully.
SO glad to hear Brayden is doing so well!!! Don't you just want to pick him up and hold him so bad!!!!! :-) Wish he and Harper could be right next to each other. I can't wait to we can see their sweet un-swollen faces.
By the way - you look amazing for just having a baby. Why do you look so good??????????? ha! I am so swollen - it's awful!
What great news!!! We are just praying that he continues to heal and praying for rest for mom and dad! Kym (MS)
I'm so glad to read that your miracle is doing better! Praise God!!
My son was born 15 weeks early weighing only 1 lb 12oz so I know how scary the NICU is! My son spent 99 days there..such a hard time! Brayden is a strong little guy and he will be home and in you and your hubbys arms before you know it!!
Still praying!!!
Lori
Happy 1 week birthday Brayden! So thankful for the good report!
I knew it!This morning when we prayed for Brayden, my kids and I just proclaimed his healing and that today would be a day of miracles! Thank you God!!!
This is wonderful news!! Continuing to pray for your sweet baby boy!!
God is good!
Oh Jenna...tears are just stinging my eyes...God is so very good. Nothing, absolutely nothing is impossible with Him!!!!!!!!! That is AMAZING that little Brady is totally off his BP Meds and the billi lights, and the fact that they don't think he has PPHN anymore...that is just a miracle. THAT IS GOD.
I will keep praying for your family.
Oh, and I didn't realize how much hair he has!! He's so adorable!!
I'm so glad to hear that he is improving. We will be praying for your everyday! Stay strong!
Oh how sweet is he! How precious! Still praying for you all! Hey, not that you'll have time to respond so maybe someone else can help me but I am trying to follow your blog but don't see the follow option on the page, I find your link on Kelly's Korner but I have missed a few updates if she doesn't update hers daily and I hate missing updates on sweet little Brayden! Hugs and prayers,
Heather ~On The Homefront~
Praise Him! I have never commented on your blog, but I've been following your story and praying for little Brayden. What great news!
Oh, I'm so happy to hear he had such a great day! Hopefully they will be able to wean his oxygen more overnight tonight. When my daughter was in the NICU, I was always excited to see how far she came overnight ... the more he gets better, the faster it will happen. You'll be home before you know it!
That report does my heart good. Our prayers are working. I think about you all through out the day! Be strong and yes GO GOD!!!!!
Pam ~ NWA
It's wonderful to hear great news about your precious baby!!! I'm rejoicing in this! Still praying!
Here from Angie's blog--Such wonderful news! We will be thinking about you all!
great news! God bless you and you're precious baby, I'm glad the prayers are working, God is GOOD
So glad to hear Brayden is improving so much! He is a doll. Will continue praying!
You are right. He is adorable.
I am praying!
I came over from Kelly's blog. You and your family are in my prayers! I will be checking back to see how your little guy is doing!
P.S. that's what I want to name my boy some day :)
That is wonderful news about Brayden. God is so good! I am praying for your family! Brayden is adorable!
I can't believe this was me 2 years ago! Its so awesome that his nitric is coming down so quickly - soon he'll be back on CPAP (if thats what you guys call it!) then on to low flow then HOME. Keep your chin up because it sounds like he is doing so great. You will see from my blog that I now have a very intelligent little boy (who at 2 wants to go to school already!) I look forward to reading of him coming home (you'll have a very placid well behaved baby).
Kelly
SO, so, so good!!! :)
He is so adorable Jenna!!! Praise God for all this healing...and MORE!
FYI...my word verificiation for this comment is Blesses...do you think that's a coincidence? I don't :)
God blesses...
Awesome!! GOD IS SO SO SO GOOD!! Praying for you!
Happy one week old, Brayden!!! He is so cute!! Glad to here all is well. Keep the faith, and God will prevail. Thoughts and prayers still heading your way. God bless ya'll!
Wonderful news, Jenna! You are all in my prayers and I am saying an extra one for Brayden's vent settings to continue to be weaned down. It sounds like he is improving in big steps each day. What a fighter!
Keeping Brayden in my prayers!
Praise Him!
Brayden looks great. Keep us updated.
Still praying in NC!
PS- Have I told you lately that Brayden is absolutely beautifuL?!
Praise God for this wonderful news. You have a beautiful little boy.
I am so excited to hear that he is doing better. What an answer to prayer.
Thank you for the update! I wait anxiously each night to hear of Brayden's progress. Praise God for He is Good.
Wonderful news!
Tears of joy are in my eyes. Praise GOD!!! I am so happy to read this positive update.
Still praying for Brayden and your family in Pearland, Texas.
Hugs,
Michele
Wonderful news! I'm at work trying not to cry! Prayers from Texas!
Praying for you little one. Glad to hear tha he is improving day by day! :)
praying in SC.
He is so precious! Praise God for all of the good reports! We will keep praying for more!
I recently found your blog through Kelly's Korner. Your family is such as inspiration! I have been praying for Brayden and God is working on your miracle child!
PRAISE GOD!!! What wonderful news from yesterday. That is so encouraging & great to have such an awesome day. Yay God & Yay Brayden. I remember the pictures all hung up around the isolet. And I remember the sense of we're really going to get out of here soon feeling when Morgan went from the open isolet to the crib/bassinet kind. I look forward to the day that you are blessed with that site (if they follow the same kind of procedures as our NICU did).
Blessings to your family. And thank you Jesus for taking such good care of Brayden.
What great news! Go lil bray bear!!! So happy he is fighting away:) Such glourious news!!
"Faith is the substance of things hoped for, the evidence of things not seen." hebrews 11:1
Sending prayers your way!
god is good all the time..all the time God is so good! praise god for the exciting improvements. praying for you in katy texas...
I don't even know y'all, but I've cried tears over you (like right now) and pleaded to our Great Healer on your behalf. KEEP BELIEVING! God gave little Brayden to you because He knew you would be the absolute perfect parents for him...you would be EXACTLY what He needed...and you are proving to us all that God definitley knew what He was doing! I will continue to pray for you all.
BTW, that little cleft in his chin is about the most adorable thing I've ever seen. He's beautiful.
Brayden is just beautiful!! I'm praying for you and that sweet baby boy!
Praise God! Amazing progress! Your little signs and pics for him brought tears to my eyes. I'm still praying for you guys and I'm so happy to continue to hear these positive updates.
OH, he's so beautiful! I'm so glad to hear that he's improving. Continued prayers for your little guy.
Hi I am a mommy of two preemie's and if you ever need to talk or need some encouragement I am here! God was the only thing that got us through our hard time and I grew so much during that time. I will be praying for your sweet baby.
Shelley
God is so good! I am so happy and know who to praise for his improvements. Brady is my middle name - my mother's maiden name...so I must admit this little guy has my eye.
many, many prayers...k
Such a praise all that is transpiring with little B. Years ago, I used to work in the NICU at ACH - Little Rock - May the LORD trul bless your family. Deut 31:8 " The Lord is the one who goes before you... he will never fail you nor forsake you!"
In Him,
Renee
Great News! I am smiling! Way to go little guy...you keep up the good work so you can go home with Mommy and Daddy!
I rejoice with you...praying in Georgia!
Jenna-
I dont' believe I have "met" you in blog world yet. But I started reading last week when Brayden was born and my heart just hurt for you. I have been praying for you since then and I am encouraged to read the progress Brayden is making. Our God is a great and mighty God!!!
You are in my prayers still!
Yay God! So happy to hear your good news! I am praying everyday for your family.
I came across your blog on Sunday night somehow and I had been praying constantly for your little man! TX
So glad to hear good news!!!
He is so cute!He is in my daily prayers....Barb
Jenna, I just posted a blog that I hope will encourage you. I had a very sick baby 1lb. 15oz. & he healed perfectly. The doctors & nurses have to tell you all of the scary possibilities but just keep praying!!!! God has so much glory to get from this! please read my blog post at www.ianandalyssa.blogspot.com I will keep praying for sweet Brayden too!
Just found out about your blog and your little one when I saw the button on my sister in law's blog. I've been praying for your son and your family ever since!
I'm so glad to hear Brayden had a great day! I came across your blog a few days ago, and have been checking in daily to see his progress. We are praying for all of you! God Bless!
Amazing news, Jenna! I know God is blessing your family--HE is incredible. Hope that each day brings more good news.
He's adorable! I'm still praying for him =]
I am praying for your little man! I can't imagine how hard it is! My son was in the NICU, but for completely different reasons - so I know nicu life well! So glad he seems to be doing better! Praying for you!
Hang in there girl. Be sure you take care of Momma. That little guy is going to be running you ragged in a few months. He's absolutely adorable.
God is good and he loves Brayden and you too. Feel his arms around you. Feel our prayers as they float around you. And give him a big kiss from me.
Just stumbled across your blog--I work at ACH in the pediatric ICU. I just wanted to let you guys know Brayden is in my prayers! Praise the Lord he is improving :) Hang in there!! Brayden is in WONDERFUL hands at ACH and there are so many people lifting him up in prayer as well.
We are praying for precious Brayden! It's obvious the Lord has something really incredible in store for Brayden and your family! I would love to mail you a Footprints bag, please email your mailing address to nicufootprints@yahoo.com
"For I know the plans I have for you says the Lord. They are plans for good not for disaster to give you a future and a hope." Jeremiah 29:11
Look at that cutie-patootie little cleft in his chin! SO SWEET! I am so thankful that he is improving! Prayers from Alabama still coming your way!
Robin @ http://alabamaslackermama.blogspot.com/
I just happened to stumble upon your blog. I want you to know that I am praying for you precious baby boy.
Melissa from South Carolina
Our God is amazing isn't he!
I love the cleft in his chin. That is a trait that I hope my future children get from my Hubby.
Hi Jenna! I found your blog through my friend Julie. Brayden is so precious and I am so thankful that God has blessed him with such a speedy and wonderful recovery. Praise God! That's so awesome. I'm a pediatric resident and am actually working in the NICU at UAMS right now, but spend the rest of my time at ACH. Let me know if you need anything. I'd love to help out any way I can!
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