Not much happened today. He is still on the narcotic that they put him on for withdrawals and they should start weaning that tomorrow. They will also let him have another go at the bottle tomorrow. If he still shows signs of acid reflux they will start him on medication for that as well, and it would be something he will go home on.We could potentially be here another week - it all depends on when he decides he would like to eat from his bottle. They increased his feeds to 33ml's each time (he eats every 3 hours). He was in a much better mood today - much calmer than yesterday.
A lot of you have asked how we are doing - Chris and I are doing well. My parents have been here every single day and we have an adjoining room at the hotel. I don't think we'd be doing so well if they weren't here. My brother and I were both NICU babies and so they know what we are going through. Jeff (my brother) was in NICU for 3 weeks and so their advice and support has been invaluable. We've had many visitors and emails of support and that has made all the difference!
I think at this point it's hard because he seems so well now, and emotionally it's difficult to understand why I can't just take him home now. But I also understand that he needs to be here until he is 100% and I don't want him to leave until he is ready. He has made a truly miraculous recovery and we are so thankful for that. Several of the nurses have come up to us to tell us that they are shocked at how fast his PPHN went away. I guess it's pretty unheard of....but we know that this is just part of God using Brayden's testimony to reach others for Christ!
Thank you for praying for our precious man and all of the other NICU babies!
.JPG)
